The  Essential Guide to Living Well with Parkinson’s

EVC manual 7th edition standing cover
Every Victory Counts® Manual

A Parkinson’s diagnosis can raise countless questions.
What is happening in my body? How will my life change? What can I do now?

The Every Victory Counts manual was created to help answer those questions — offering trusted information, expert insight, and real-world perspective to help people living with Parkinson’s better understand what they are experiencing and how to navigate daily life.

Available in print or digital.

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Trusted by the Parkinson’s Community

“I appreciate the manual’s fundamental perspective, which is to empower people to live well with Parkinson’s today. I routinely recommend this manual to my patients, whether they are newly diagnosed or have been living with Parkinson’s for years.”

“The Every Victory Counts manual includes everything you need to know about the motor and non-motor symptoms you may experience with Parkinson’s, but it also contains invaluable and incredibly rich information about emotional health, exercise, the importance of connecting, and various other topics that I’d write down on my prescription pad if I could. Use this manual as much as you can to create the optimal circumstances for yourself!”

“Let this book be a helpful companion on your Parkinson’s path. Together, we can redefine what it means to live well with Parkinson’s. Remember, it’s not just about surviving; it’s about being fully alive — with purpose, connection, and joy — one victory at a time.”

“There is so much to know about Parkinson’s and so many resources from a multitude of places that it can be overwhelming. The Every Victory Counts manual is an up-to-date resource from a trusted organization that can be helpful at the time of diagnosis and also referred to over and over again as time goes on.”

“The Every Victory Counts Manual is truly the Parkinson’s Bible. I make sure that every patient I see with Parkinson’s receives one to address all of the motor and non-motor symptoms they may experience as a comprehensive reference manual. It has so much to offer backed by the latest research available. I have received amazing feedback at how invaluable it has been for everyone that has it.”

“The Every Victory Counts manual was a lifeline when I was tentatively diagnosed with Young Onset Parkinson’s and waiting to see a specialist. It helped me understand why my body wasn’t working the way it used to—and it gave me the confidence to take action with exercise, medication, rest, diet, balance, and a strong care team.”

“I keep a copy of the Every Victory Counts manual in my truck at all times. Whether I’m meeting someone newly diagnosed, visiting a Movement Disorder Specialist’s office, or attending a Parkinson’s event, I bring it with me and share it with anyone who could benefit. I often call it the ‘encyclopedia of Parkinson’s.’ It’s everything you wish you had time to ask your doctor, all in one place.”

What You’ll Find Inside

The Every Victory Counts manual explores the many aspects of life with Parkinson’s, bringing together expert insight and lived experience to help readers better understand Parkinson’s and the many ways it may affect their lives.

  • Understanding Parkinson’s Learn what Parkinson’s is, how it is diagnosed, and how symptoms may change over time.
  • Exercise and Movement Understand why exercise is one of the most powerful tools for living well with Parkinson’s.
  • Emotional Health, Communication, and Relationships Find guidance to understand the emotional impacts of Parkinson’s, communicate your diagnosis, and navigate changing relationships.
  • Symptoms and Treatments Explore motor and non-motor symptoms, medications, therapies, and emerging treatments.
  • Building Your Care Team Learn how to work with neurologists, therapists, and other specialists to support your health.
  • Community and Living Well Discover the importance of connection, purpose, and community throughout the Parkinson’s journey. Throughout the manual, you’ll also find essays and reflections from people living with Parkinson’s and clinicians who work with the Parkinson’s community every day.

Looking for the Care Partner manual? Download it here.

A Guide for People Living With Parkinson’s and Their Care Partners

People Newly Diagnosed

If you’ve recently been diagnosed (or even waiting to clarify a diagnosis), the manual can help you better understand Parkinson’s and begin navigating questions about symptoms and care options.

People Living With Parkinson's

For those who have been living with Parkinson’s for years, the guide serves as a reference you can return to as symptoms, treatments, and questions evolve.

Care Partners, Friends, and Family Members

The people who surround a person with Parkinson’s play a critical role. The manual provides information and perspective that can help support systems navigate Parkinson’s together.

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Wellness Professionals

Whether using the manual to support your own learning or keeping it on hand to share with people you treat, the manual is a useful tool to support you and your practice.

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Wherever you are in life with Parkinson’s, the Every Victory Counts manual is designed to help you better understand Parkinson’s and discover the many ways to live well.
EVC manual 7th edition cover

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Learn more about Parkinson’s and discover trusted information to help you live well. 

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Thank You to our
EVERY VICTORY COUNTS Manual Sponsors

The Every Victory Counts manual is made possible through the generosity of donors and sponsors who believe everyone affected by Parkinson’s deserves access to trusted information.

Supported by an independent educational grant from AbbVie.

And in part through the generous support
from our Every Victory Counts® donors:

Ken and Pam Alexander
Dale and Barb Ankenman
Eric and Keri Carlstrom
Ken and Abby Dawkins
Nancy Dehmlow
Pati and Phil Frey
Bonnie Gibbons
Gail Gitin in loving memory of Gene Gitin
Amy Howard and Scott Hunsaker
Julian M. and Sue D. Lifschiz
Bart Narter and Jorge Reyes
Irwin Narter
David and Stacey Schmid