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You’re the Inspiration: A Look into the New Every Victory Counts® Manual

youre-the-inspiration-a-look-into-the-new-every-victory-counts-manual

You’re the Inspiration: A Look into the New Every Victory Counts® Manual

One of the best things about working for the Davis Phinney Foundation is making new friends in the Parkinson’s community. You leave indelible impressions on us. You’ve told us about what matters to you and your family. You have helped us shape our programs, resources and research initiatives.

As we began to reimagine our signature resource, the Every Victory Counts® manual, we drew upon everything we’ve learned since it was first published in 2010.

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You’ve told us what you need, what you’re afraid to discuss and what inspires you. You’ve told us what you love about the Every Victory Counts manual and made sure we understood the important, even transformative, role it has played in your lives.

With those things in mind, we sat down with lead authors and movement disorder specialists, Dr. Monique Giroux and Sierra Farris, and more than 40 respected Parkinson’s medical experts and advocates from the US, Canada and Europe to significantly expand and update the topics covered in the manual, while carefully preserving its heart and soul.

For nine months, we worked closely with 17 people living with Parkinson’s and care partners to show how the concepts and recommendations of the Every Victory Counts manual translate into living well today. These 17 people, whom we call our Parkinson’s Guides, are in many ways the stars of the show.

Through their written and filmed stories, you’ll see how different people with their own unique circumstances lead happy, fulfilling lives. You’ll witness their particular ups and downs and strengths and weaknesses. They have opened up with remarkable candor to share how they’ve coped with diagnosis, overcome depression and apathy, navigated physical and cognitive changes, transitioned in and out of careers and planned, with open eyes, for hopeful futures. We are indebted to them for giving their time and energy both to the manual and to its newly created companion website.

Our new manual is jam-packed with up-to-date information about everything Parkinson’s, plus an expanded worksheets and resources section to help you put what you’ve learned into action. Color coding and engaging graphics help guide you through the written material and point you to complementary videos, podcasts and other materials on the Every Victory Counts companion website. And, it is still free of charge thanks to the generosity of our sponsors.

Request your copy of the new Every Victory Counts manual by clicking the button below.

Order Your Copy Now


Thank you to the Every Victory Counts manual sponsors:

AbbVieAcadia Pharmaceuticals
Acorda
Adamas
Growling Beaver
HealthONE
LundbeckMedtronic
SunovionUCBUSWorldMeds
Larry Christensen Family

6 Comments on “You’re the Inspiration: A Look into the New Every Victory Counts® Manual

    • Ma Magno

      September 16, 2017 at 3:44 pm Reply

      The original manual I received through this generous program was one of the most helpful tools for preparing for my doctors visits. I used the page that has a drawing of a body to circle specific areas of pain to discuss with the doctor and PT so I would not forget the issues I wanted to cover in my visit. The PT was very impressed with the manual.

      • Alex Reinhardt

        September 20, 2017 at 11:31 am Reply

        We’re so happy you have received such a benefit from our Every Victory Counts manual. The newest edition, has a remarkably robust worksheet section that make it easy to track your wellness practices and symptoms. There are over twenty worksheets that help people with Parkinson’s develop greater awareness of their needs, learn better self-care, and organize their thoughts so they are better prepared to make the most of their appointments with their specialists.

    • kamprasad

      September 17, 2017 at 7:24 am Reply

      Dear folks youare doing excellent work.Ithank you for sharing the research. Kamprasd

      • Alex Reinhardt

        September 20, 2017 at 11:33 am Reply

        You are most welcome! We hope you find this manual useful and informative! Please share this resource with those you think can benefit from it.

    • Linda Swanson

      September 20, 2017 at 5:55 pm Reply

      How to live well with Parkinson’s disease manual? I could have sworn I heard them say this was about Living the Party scene life magazine. I guess that will teach me to listen better. Oh by the way a sense of humor is a must when you have PD. I am very proud to have been asked to be part of this endeavor. I really should have suspected something was array! ME and party scene in the same sentence, Now that is funny! Thanks Davis. Polly, Ally, Heather, just to name a few. Most of all I would like to thank all of the other PD patients for helping change the face of Parkinson so we can live our lives well and hopefully ever hear someone say Who is that Masked Man!

      • Alex Reinhardt

        October 18, 2017 at 2:09 pm Reply

        Thank you very much for all your support and involvement, Linda! Over the past month or so, we’ve been working to get this resource into as many hands as possible and need to thank our community for spreading the word. This manual is a success because of the broad network of wonderful people and their willingness to help those around them. Thanks again!

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