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Growing Up with a Parent who has Parkinson’s

[The Parkinson's Podcast™]

Growing Up with a Parent who has Parkinson’s



growing-up-with-a-parent-who-has-parkinsons



Kelsey Phinney Talks to Jacie and Matthew 
about Growing Up with a Parent Who has Parkinson’s

Life is short. I’m not going to let Parkinson’s take anything away from me.

– Matthew Ater

What is it really like to grow up with a parent who has Parkinson’s? 

Well, just like with everything else about Parkinson’s, it depends. 

That’s why we wanted to hear from those who’ve done it. In this podcast, Kelsey Phinney talks to Jacie and Matthew about their experiences.

Matthew was six years old when his mom was diagnosed with young onset Parkinson’s disease (YOPD). Jacie was 17. While their experiences have been quite different, and they have taken on very different roles because of the age they were when their parents were diagnosed, they also share some common experiences that we hope will be helpful to you.

At the end of the podcast, they also offer advice to others out there who are traveling a similar path. Matthew shares the importance of having a positive attitude and being an emotional support system for his mom. Jacie talks about how difficult but also how valuable this experience has been for her, and how she has taken what she’s learned over the years and applied it to be more happy and successful in her own life. 

They are both so open and honest, and we hope that what they’ve shared will make you feel less alone.

Concepts Mentioned in this Podcast & Further Reading

Exercise and Parkinson’s
Deep Brain Stimulation (DBS)
Care Partners

Thanks for Listening!

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1 Comment on “Growing Up with a Parent who has Parkinson’s

    • Carl Ames

      October 15, 2018 at 11:10 pm Reply

      Thank you Kelsey, Jacie, and Matthew !
      What some awesome children of parkeys you are! Love you!

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