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Growing Up with a Parent who has Parkinson’s

[The Parkinson's Podcast™]

Growing Up with a Parent who has Parkinson’s


Kelsey Phinney Talks to Jacie and Matthew 
about Growing Up with a Parent Who has Parkinson’s

Life is short. I’m not going to let Parkinson’s take anything away from me.

– Matthew Ater

What’s it really like to grow up with a parent who has Parkinson’s?

Well, just like with everything else about Parkinson’s, it depends.

That’s why we wanted to hear from those who’ve done it. In this podcast, Kelsey Phinney talks to Jacie (17 when her dad was diagnosed) and Matthew (six when his mom was diagnosed) about their experiences.

In this episode, you will learn:

  • Common experiences that many children of parents with Parkinson’s face
  • The importance of keeping a positive attitude about Parkinson’s
  • The role children can play in encouraging their parents
  • The good and bad parts about being a parent’s emotional support system
  • How living with a parent with Parkinson’s can influence everything from relationships to career choices and the values that matter most

Jacie and Matthew are both so open and honest, and we hope that what they’ve shared will make you feel less alone.

Concepts Mentioned in this Podcast & Further Reading

Exercise and Parkinson’s
Deep Brain Stimulation (DBS)
Care Partners

Thanks for Listening!

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  • Leave an honest review on iTunes. Your ratings and reviews really help, and we read each one.
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Listen & Subscribe

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3 Comments on “Growing Up with a Parent who has Parkinson’s

    • Carl Ames

      October 15, 2018 at 11:10 pm Reply

      Thank you Kelsey, Jacie, and Matthew !
      What some awesome children of parkeys you are! Love you!

    • Lorraine

      March 30, 2019 at 10:15 am Reply

      One more reason I’m thrilled to bring Sidekicks to a local elementary school where one student’s daddy has Parkinson’s and others have grandparents with it.

      • Melani Dizon

        April 2, 2019 at 6:11 am Reply

        That’s great, Lorraine. We are getting such great feedback on the program and are getting requests every day to bring it to more and more places. We look forward to hearing about the program you do at the elementary school.

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