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How should I share my Parkinson’s diagnosis with my family?


How should I share my Parkinson’s diagnosis with my family?

Getting a diagnosis of Parkinson’s is life changing and not everyone handles it the same way. Some choose to share it with loved ones right away, and we’ve spoken to others who have kept it to themselves for years. While there’s no one right way to do it, two Davis Phinney Foundation Ambassadors share when and how it worked for them.

In this video, Rich talks about how he chose to share his diagnosis with friends and family.

In this video, Tom talks about why he wanted to share his diagnosis from the very beginning.

More Ideas on Family Communication and Parkinson’s

Communicating with Children about Parkinson’s with Connie Carpenter Phinney
How to Talk to Your Adult Children about Your Parkinson’s with Brian Reedy
How to Talk to Young Children about Parkinson’s with Dave Easterly
How to Talk to Adult Children about Parkinson’s with Mike Swanson
Communicating with the Extended Family about Parkinson’s with Nancy Hovey
On Inviting Adult Children into the Parkinson’s Conversation with Scott Anderson
Marriage and Parkinson’s with Steve Hovey

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2 Comments on “How should I share my Parkinson’s diagnosis with my family?

    • judith sather

      October 12, 2018 at 3:30 am Reply

      What to say

      Prior to losing consciousness, the remarks by the anesthetist were directed about Parkinson’s as I worked at positioning myself on the operating table. She made negative remarks about the devastating disease and how it robs a person of abilities to do things.
      Of course, I was a goner before there could have been any kind of response. She was behind my shoulder so there was no eye contact. This moment was gone forever. This operation was to remove an arthritic cyst from a finger—nothing to do with my state of chronic disease.
      In retrospect as I type this using the thumb of my bandaged right hand and pecking out these words with my left hand fingers, I’m expressing my response to her comments:
      “Maybe your approach to someone living with Parkinson’s should be: ‘I hope you are finding a way to live well today.’ “

      • Melani Dizon

        October 12, 2018 at 6:19 am Reply

        Judith, that sounds like the perfect response and one that many would benefit from hearing. I hope your finger heals quickly. Thank you for reading.

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