RESOURCESResearchPD Clinical trials. Website developed to increase awareness of clinical research trials available to people with PD. www.pdtrials.org. Online Sources for Care PartnersThese sites offer helpful tips, support and education for family and care partners. Family Caregiver Alliance: www.caregiver.org National Alliance for Caregiving: www.caregiving.org Resource for Care Partners: www.caregiving.com CareGivers of People with Parkinson’s (CARE): www.pdcaregiver.org Recommended BooksEvery Victory Counts: Essential Information and Inspiration for a Lifetime of Wellness with Parkinson's Disease. HOPE: Four Keys to a Better Quality of Life for Parkinson’s People.
The First Year-Parkinson’s Disease: An Essential Guide for the Newly Diagnosed
The Book of Exercise and Yoga for Those with Parkinson’s Disease
What Your Doctor May Not Tell You about Parkinson’s Disease: A Holistic Program for Optimal Wellness
Parkinson’s Disease and the Family: A New Guide
Parkinson’s Disease & the Art of Moving
MOVE IT! An Exercise and Movement Guide for Parkinson's Disease YOGA for Movement Disorders: Rebuilding Strength, Balance and Flexibility for Parkinson's Disease and Dystonia Swallow Safely: How Swallowing Problems Threaten the Elderly and Others Author: Davis Zid, 2007. www.delaythedisease.com
Wellness, Diet and Self-HealingNorthwest Parkinson’s Disease Foundation Center for Wellness
Eight Weeks to Optimal Health
Guided Imagery for Parkinson’s Disease
American Psychological Association. Learn more about psychological conditions or find a psychologist near you at www.apa.org. Center for Complementary and Alternative Medicine. An overview of meditation theory and resources. Also a good site for other alternative and mind-body therapies.
International Association of Yoga therapists. Learn about the healing potential of therapeutic yoga or find a yoga therapist. www.iayt.org. Nutrition, Vitamins and SupplementsHealthy Lifestyle recommendations of the American Heart Association
Dietary Guidelines of the US Department of Agriculture
Institute of Medicine Nutritional Guidelines
The food pyramid recommendations are contained in the 2005 Dietary Guidelines for Americans and can be purchased from the US Government Printing office by calling (866) 512-1800. Refer to stock number 001-000-04719-1 or go to bookstore.gpo.gov. It can also be viewed online at www.healthierus.gov/dietaryguidelines/index.html. Vitamins and SupplementsUnited States Pharmacopeia (USP)
Consumer Labs
Mayo Clinic
Drug Assistance ProgramsThese sites list pharmaceutical company drug financial assistance programs sponsored by pharmaceutical companies. Needy Meds: www.needymeds.org Rx Assist Patient Assistance Program Center: www.rxassist.org Deep Brain Stimulation Programmer DatabaseThe DBS Programmer Database was created and managed by Sierra Farris since 2007 to help patients and families find professionals that provide DBS programming services in their local community. The Database is simple to use and offers a free listing service for DBS programmers which includes programming experience, educational background and clinic scheduling information. Newsworthy updates and links are also listed for both patients and professional programmers. Parkinson’s Disease FoundationsMichael J Fox FoundationThe Michael J. Fox Foundation is dedicated to finding a cure for Parkinson’s disease through an aggressively funded research agenda and to ensuring the development of improved therapies for those living with Parkinson’s today. We believe without fail that our goal is within reach - but we can’t get there without your support. Please join the fight today. Michael J. Fox Foundation for Parkinson’s ResearchChurch Street Station, P.O. Box 780, New York, NY 10008-0780 Phone: (800) 708-7644
Parkinson’s Disease FoundationThe Parkinson’s Disease Foundation (PDF) is a leading national presence in Parkinson’s disease research, education and public advocacy. We are working for the nearly one million people in the US who live with Parkinson’s by funding promising scientific research to find the causes of and a cure for Parkinson's while supporting people with Parkinson’s, their families and caregivers through educational programs and support services. Since its founding in 1957, PDF has funded over $80 million worth of scientific research in Parkinson’s disease, supporting the work of leading scientists throughout the world. If you or a loved one is living with Parkinson's disease, we encourage you to call our National HelpLine (800) 457-6676, or Ask the Expert your questions about PD, using our online service. Parkinson’s Disease Foundation Main Office
National Parkinson’s FoundationThe mission of the National Parkinson Foundation is to improve the quality of care for people with Parkinson’s disease through research, education and outreach. Founded in 1957, NPF is a leading national organization with an extensive grassroots network of Centers of Excellence, chapters and support groups in the United States, Canada and internationally. Unique among the national Parkinson’s organizations, NPF is the only organization with a singular focus on improving the quality of care in Parkinson’s disease. Since 1982, NPF has funded more than $150 million in care, research and support services. The core of our efforts is the NPF Center of Excellence network, 43 leading medical centers around the globe that deliver care to more than 50,000 Parkinson’s patients. Through this network, NPF creates a community of health care professionals dedicated to improving clinical care in Parkinson’s disease. In each of our research, education and outreach programs, NPF is dedicated to promoting our passionate belief that the best care is a comprehensive approach that addresses the whole person and the full range of symptoms of the disease. National Parkinson’s Foundation, Inc
American Association of Parkinson’s DiseaseThe American Parkinson Disease Association, Inc. was founded in 1961 to "ease the burden and find a cure" for Parkinson's disease. Headquartered in New York, the organization focuses its energies on research, patient support, education and raising public awareness of the disease. The American Parkinson’s Disease Association National Office
Parkinson’s AllianceThe Princeton, NJ-based Parkinson Alliance is a national non-profit organization dedicated to raising funds to help finance the most promising research to find the cause and cure for Parkinson's disease. Through the generous support of The Tuchman Foundation and our numerous partnerships, we are in the unique position to guarantee that 100% of all individual donations and all net proceeds from all events go directly to research. The Parkinson’s Alliance
Northwest Parkinson’s FoundationThe Northwest Parkinson's Foundation is a nonprofit organization established to improve quality of life for the Northwest Parkinson's disease community. We achieve our mission through programs of awareness, education, advocacy and care. In addition to producing educational resources, providing support to patients and caregivers, and advocating on behalf of Parkinson's families in our region and beyond, we are a partner in the Kirkland, Washington-based Booth Gardner Parkinson's Care Center, which we co-founded with Evergreen Healthcare in 2000. This facility, a regional center of excellence in the treatment of Parkinson's disease, houses Parkinson's-specializing physicians, neuropsychologists, physical and occupational therapists, speech and swallowing therapists, counselors and educators. Northwest Parkinson’s Foundation
Parkinson’s Action Network (PAN)1025 Vermont Avenue NW, Suite 1120, Washington, DC 20005
Parkinson Society Canada4211 Yonge Street, Suite 316, Toronto, ON M2P 2A9 Canada
WE MOVE (Worldwide Education & Awareness for Movement Disorders)204 West 84th Street, New York, NY 10024
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