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Boston University supports Davis Phinney Foundation in launching new resource to encourage living well with Parkinson’s Disease

ContactStephanie Rotondo, (617) 353-7476, rotondos@bu.edu

(Boston) – Imagine you are one of the 60,000 new U.S. cases of Parkinson’s disease diagnosed each year. Where can you turn for accurate information? How can you learn what to expect and how to make things easier? Recognizing the need to provide a roadmap for people of all ages and at all stages of Parkinson’s, Boston University’s College of Health and Rehabilitation Sciences: Sargent College has collaborated with The Davis Phinney Foundation and other renowned research institutions to launch the Foundation’s Every Victory Counts® manual’s second edition.  This manual uniquely gives people living with Parkinson’s – and their care partners and family members – the tools they need to take a proactive approach to self-care from diagnosis through advanced stages of the disease, including the latest information for the recently diagnosed, expanded content specifically for care partners and guidance for living with young-onset Parkinson’s. Boston University is among leading Parkinson’s research centers with contributors to the manual’s content.

The Every Victory Counts manual, which is endorsed by the American Academy of Physician Assistants, offers rich, interactive content including a chapter by Boston University’s Terry Ellis, PT, Ph.D., who also served as an advisor for the book. The manual includes worksheets, medication logs and questionnaires, all designed to help people monitor their health, create action plans and facilitate communication with healthcare professionals and care partners. TheEvery Victory Counts manual also addresses key topics, such as: talking to family and coworkers about the disease, exercise, nutrition, emotional health, deep brain stimulation, medical, surgical and behavioral therapies, intimacy, care partner issues and the importance of staying engaged.

“I’m honored to have worked with The Davis Phinney Foundation on developing a manual that offers individuals and their families a positive resource for living with Parkinson’s disease,” said contributor Terry Ellis, PT, Ph.D., assistant professor in the Department of Physical Therapy and Athletic Training at the Boston University College of Health and Rehabilitation Sciences: Sargent College, and director of the National Resource Center for Rehabilitation established by Boston University and the American Parkinson Disease Association (APDA).  “Our goal is to empower individuals with Parkinson’s to live life to the fullest and to take an active role in their own care. Using this manual, they can learn unique strategies and techniques to help manage all aspects of the disease.”

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